Tag Archives: dementia

For Better or for Worse: My Advocacy Story

By Cheri Whitlock On January 9, 1988, my husband Jim and I spoke traditional vows of better or worse, richer or poorer, sickness and health, till death do us part. In our 30 years, we have shared all the normal ups and downs of married life. We moved across the country and bought a home, […]

From dementia friendly to dementia inclusive: A Q&A with Dr. G. Allen Power

G. Allen Power, MD is a board certified internist and geriatrician, and newly named Schlegel Chair in Aging and Dementia Innovation at the Schlegel—U. Waterloo Research Institute for Aging in Ontario, Canada. He is also clinical associate professor of medicine at the University of Rochester, New York, a Fellow of the American College of Physicians […]

Justice for families: My advocacy story

Patricia Kienholz is a very busy woman. She is a single mother of two, an avid learner, working about 70-90 hours a week between her work in the nonprofit sector and helping to run a family-owned business. “I can’t stand idle time, and my brain only slows down when I’m sleeping,” she said. Still, Patricia takes […]

treadmills

Finding hope after my diagnosis

By: David H. Brown The neurologist said three simple words and asked me to repeat them. They were “apple,” “tree” and “desk” — or something like that. Single-syllable nouns. Then he asked me to repeat them. And then he asked me to repeat them again. After five, six or maybe more times, I thought it […]

I am living with Alzheimer’s: My advocacy story

by Julie Burger Julie Burger was diagnosed with Alzheimer’s disease in 2016 at age 76. Born in Puerto Rico, Julie moved to the United States to attend school, graduating first in her high school class. In college, she majored in physiological psychology and earned a master’s degree in human resources. Julie has worked in various […]

Pramila Jayapal standing with a group of people

Fighting Alzheimer’s: Supporting families and funding research

By Pramila Jayapal, Congresswoman for Washington District 7 In the summer of last year, I was approached by a constituent with a story that I’ve heard all too often. Mikaela Louie was born and raised in Seattle and was working abroad after completing her undergraduate program when tragedy struck. Mikaela received a call from home: […]

Two people with Down syndrome

Caring for someone with Down syndrome and dementia? Now there’s a support group just for you

By Alison Koop If someone you love lives with Down syndrome, you may already know that they’re at an increased risk for developing dementia. Maybe your child, sibling or friend has been diagnosed with Alzheimer’s disease and you’re having to adjust to a new normal. Perhaps you’ve noticed changes in their memory, abilities or behavior […]